Pregnancy and PCOS

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Polycystic Ovary Syndrome (PCOS) is a scary term to hear for the first time, especially at a young age. From the day I was diagnosed at the age of 17 after years of problems, the words “you may have problems with fertility” haven’t left my mind. My GP gave me a brief description of what PCOS is and left me to research the condition myself. It was a lot for me to take in, especially as I had read some pretty horrific stories online from women with similar symptoms.

Over 10 years later, the pure relief of seeing a strong pink line on three pregnancy tests was indescribable. I am ridiculously excited about starting my family, but on a personal level I feel as though I have won a battle against my PCOS.

I wish I’d have known about the work of Verity back then to reassure me that the symptoms were treatable instead of keeping me it bottled up and letting it eat away at my confidence and fill me with insecurities. This is why I have chosen to support this charity, so that I can give support to girls who are going through a similar experience as I did.12928251_10154067347344140_3695766100914707501_n

Verity is a registered, non-profit charity which is a self-help group for women with PCOS. The group was established in 1997 to share the truth about the condition and improve the lives of women living with PCOS. The charity is run by a dedicated board of trustees, a team of volunteers and thousands of women in the UK and internationally.

My biggest fear from the day I was diagnosed, like many other women with PCOS, was infertility and fertility complications. This fear had been with me for over 10 years and slowly faded away in November last year when my husband and I found out that we are expecting.

The first three months were harder than anticipated; I suffered from terrible tiredness, severe stomach cramps and had an awful water infection that knocked me off my feet. But I was very lucky with morning sickness, I was only poorly once and the nausea was fairly mild. PCOS gave me anxiety in the early days as I was constantly worried about all the statistics and figures relating to PCOS and miscarriage, but I felt like I’d climbed Everest when everything was perfect at our 12 week scan.

I’m now 26 weeks pregnant and I feel amazing apart from the aches and pains that come with carrying a baby. I feel so blessed and extremely lucky to have successfully started a family with my perfect husband. Our growing baby is happy, healthy and very active, I couldn’t wish for anything more than that!

I wanted to share my success story with ladies suffering from PCOS as there is far too much negativity out there about the condition, I wanted to bring a little joy to those that need to hear, like me, that there is hope, and PCOS doesn’t always mean infertility. I found that reading other peoples’ success stories about their journeys with PCOS takes the edge of the negative thoughts I had and gave me lots of hope, which, I’d like to share with other people who need it.

Here are a few statistics that back up my experience A 2009 study of 154 women with PCOS showed that:

  • 86.7% of those who attempted to fall pregnant had given birth to at least one child (91% of women in the control group who didn’t have PCOS had at least one child).
  • 67.5% of the women involved had at least one spontaneous pregnancy.
  • Interestingly, this study did not show an increased rate of miscarriage in women with PCOS.
  • Also, women with PCOS tend to have a higher ovarian reserve. As our cycle is often irregular, not all of our follicles mature, meaning that we have more viable follicles when we are older than women without PCOS do. Basically, age is not necessarily as big a hindrance to falling pregnant for women with PCOS.

My PCOS has led me to become a volunteer for Verity, a charity that supports women with Polycystic Ovary Syndrome (PCOS). I help out with marketing and promotion of the charity in my spare time and get involved in fundraising. I also run a PCOS support for women in Lancashire. To join my group see our facebook page https://www.facebook.com/groups/veritylancashire/

It’s taken me a long time to overcome the embarrassment and insecurity the symptoms have caused me over the years and to accept that although PCOS is treatable, it cannot be cured.

Polycystic Ovary Syndrome is the name given to a condition where a woman has small cysts usually no bigger than 8 millimetres each, located just below the surface of the ovaries. These cysts are egg-containing follicles that have not developed properly due to a number of hormonal abnormalities.

Polycystic ovary syndrome (PCOS) affects 5–10% of women in the UK and millions worldwide. It can run in families and is one of the leading causes of fertility problems in women. If not managed properly, this condition can lead to additional health problems later in life. PCOS can also affect a woman’s appearance which in turn can affect a woman’s confidence and self-esteem.

Symptoms can include:

  • Irregular periods, or a complete lack of periods
  • Irregular ovulation, or no ovulation at all
  • Reduced fertility, difficulty becoming pregnant and recurrent miscarriage
  • Unwanted body hair (Hirsutism)
  • Oily skin and acne
  • Thinning hair or hair loss from the scalp (Alopecia)
  • Weight problems – being overweight, rapid weight gain, difficulty losing weight
  • Depression and mood changes.

The condition has long-term health implications to as there is an increased risk of developing diabetes and heart disease.

So, I hope that my story and some of the information included here gives other ladies with PCOS the hope and determination to extend their family and not to give up the fight against PCOS.

If you can relate to anything mentioned above, I’d like to hear your views, thoughts and experiences.  No more suffering in silence, it’s time to open up and support each other.

If you would like to donate to Verity or offer your support in any way, please visit my fundraising page for more information:www.justgiving.com/MrsFaulknerPCOS

I’m sure that there are so many of you who are trying to conceive or have already conceived. I’d love to hear from you so that we can celebrate our victories and encourage each other when it’s needed! Leave me a comment below!

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7 Comments Add yours

  1. Emma Lawton says:

    First of all congratulations! I have only just been diagnosed after taking years to pluck up the courage to go to the doctors about my symptoms….I am a massive planner so the fact my fertility may be affected is a massive blow that I am struggling to cope with. I am getting married next year and the baby questions are coming already. I have to play along as I can’t bring myself to explain the condition as I can’t talk about the symptoms I have! I have pushed my doctors for more information but they just keep telling me to come back when I can’t get pregnant. The statistics are reassuring so thank you 🙂 xx

    Liked by 1 person

  2. Justine says:

    Hi
    I have just joined the verity Lancashire group, after being officially diagnosed with PCOS and having an emergency op to untangle my ovary & fallopian tube which got tangled and twisted due to a huge heavy ovary full to burst with cysts. I managed to keep the ovary (unfortunately along with my cysts!) And am starting chlomid next week to begin my attempt to concieve.
    However I understand the struggle is a long term one and I am afraid of the future. As a fitness instructor I struggle to keep my weight down and find this very embarrassing and I worry it will effect my career. I have also suffered eating disorders my whole adult life which adds to this complication.
    I really need this help, advice and support more than you could imagine.
    Thank you x

    Liked by 1 person

  3. Kathryn says:

    To the original poster – congratulations on your pregnancy and all the best for the coming weeks.

    I too was diagnosed aged 17 and was sent away from my consultant with a “come back when you want children, you’ll need ivf”. I got married age 30, and after trying around 8mths without success, quit my stressful job with a view to taking a 2yr career break to give IVF a best shot. I knew I would need to shift some weight…. so decided to start that… but a month into “unemployment” found I was really weepy / crying over everything… and I worried I was a bit depressed….so decided to be a bit more proactive and went privately to a fertility clinic, armed with my duofertility data (a small temperature recording device that detects your ovulation dates more efficiently) to start “the process”… only to find out two days later… I was already pregnant without any help… explaining the weepiness!!! I do think reducing stress really helped me – looking at my dates, I fell pregnant 2 weeks after walking out of the office.

    I took metformin through my 1st trimester as my consultant said there was some evidence it reduced miscarriage risk (although this conflicts with the guidance given at the Verity panel at the 2015 AGM)….. and as the original poster, held my breath through the 12-week and 20-week scans, and the glucose tolerance testing for gestational diabetes (which thankfully didnt occur) ……and after worrying for so long about “holding on” to the baby, it was strange to have to “evict” her at 42 weeks (as overdue as you can go) with an induced labour :o) The career break became permanent…. she turned 3 this week and continues to amaze me :o)

    While I appreciate I needed to be mindful of the potential impact on my fertility of my PCOS diagnosis… I wish I’d been armed with the statistics above and been able to be a bit more positive about the future through my 20s ….. and enjoyed my pregnancy a bit more. I’ve been a member of Verity for a while, but attended conference for the first time last year – which I found really interesting and supportive. I’m in the process of trying to shift some weight (again), for my future health… and with an eye to maybe trying for a 2nd.

    Good luck to the posters above who are about to try – stay positive.

    Liked by 1 person

  4. Roz says:

    Hi, congratulations! Fantastic to hear of the pregnancy news.
    This was a lovely read of a success story as I sit hear at 2.45am nursing my very own baby! I am now the proud mum of a beautiful 7 week old little girl after several years of TTC . I am still in disbelief and I constantly stare at her thinking how lucky I am and in the darkest periods of the last few years I never thought this moment would come. I have found myself in a very similar situation to yours diagnosed with PCOS and constantly thinking about wanting a baby and my fertility.
    I was due to start fertility treatment last June and a few days before the treatment I found out I was already pregnant. The first 12 weeks for me were agonising. I couldn’t come to terms with actually being pregnant as I just thought it would never happen. With all the hormones exacerbating the situation, I lived in an emotional turmoil. I was extastic that I had managed to conceive but on the other hand thinking something terrible was going to happen.
    Even after all the scans including quite a few extra growth scans etc I still couldn’t believe there was a baby inside, until the day I gave birth I didn’t believe it. I had a very good pregnancy right the way through, until towards last week I got pregnancy induced hypertension. I was induced but considering the circumstances I stayed calm and delivered my baby by emergency section.
    If I was told of these statistics whilst TTC I may have relaxed and it might have happened sooner for us who knows! But the want for this baby has made her a special little girl and two parents extremely happy, until you go through fertility complications nobody can empathise with the emotions of wanting a baby so much. Now she is here, I feel everything was meant to be and I was just waiting for her, if anything I feel much calmer than I anticipated, I suppose after the long wait and wondering what will happen, I ultimately feel, this was meant to be and everything will be ok in the end.
    I hope all the ladies TTC get hope from my story!! And take a more optimistic approach than me and believe it will happen, it may have made the TTC and pregnancy journey less painful and anxious.
    I wish you all the well wishes in the world and I am so excited for you, knowing what you are about to embark on! It is the most amazing feeling of utter love.
    Lots of love
    R x

    Liked by 2 people

  5. Elise says:

    First and foremost congratulations!!!!
    I was diagnosed atvthr age of 16. The first thing the doctor told me was that I would never have a baby and I have cancer. It hurt so bad. For a long time I didn’t want to have any children and when I met my husband I knew I had to give it a try.
    We’ve been married for 2 1/2 & have been trying for a couple of months now. Its very hard and very emotional part going on in our lives. We’re doing IUI and it’s hard every time I get the IUI and it fails I feel like a piece of me is dying. That I’m letting my husband down. They say to keep going because you never know when its going to take and your chances grow. But I so want to stop and never try again.
    Thank you for your positive story it makes me feel like there is hope. I’m in the US would they help me out here?? I know you said international but just want to make sure the US is in the mix. Many blessings to you and your family.

    Like

  6. Yvonne Parrilla says:

    That’s awesome news!! Is there a branch of this charity here in the US(South Florida) I’d really like to get involved but have found anything. Feedback would be appreciated, thank you for sharing, congratulations!!

    Liked by 1 person

  7. Steph says:

    Congratulations first of all and secondly how did u get pregnant I have had pcos since I was 19 I don’t have most of the symptoms externally but internally I feel a mess and going from having 2 periods a month to this month none just spotting and feeling very weak/tired I would love some advice on how u got pregnant? ?

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